Pursuit Walk Fundraiser Supports Pediatric Palliative Care Program
2011-03-02 · By Editor
To support the Pediatric Palliative Care Program at Miller Children’s Hospital Long Beach, patients, family members, employees and community supporters will participate in the Palliative Care Pursuit Walk. The walk is being held to raise awareness of palliative care, a program offering physical and emotional support and comfort to patients with chronic or serious illnesses, as well as raise funds to expand the palliative care program at Miller Children’s. The palliative care program improves “quality of life” for children with life-threatening illness and to better addresses the physical, psychological, social and spiritual needs of pediatric patients and families.
Rachel Llanos is one of more than 100 parents whose family benefited from the supportive/palliative care program. Her daughter, Kelly, had a rare chromosomal abnormality called Trisomy 13 that led to heart problems and the need for constant care at Miller Children’s throughout her life. Although Kelly has passed away the Llanos family was deeply touched by the supportive/palliative care program, which provided comfort to Kelly and her entire family. When it was time, Kelly was able to pass away peacefully at home surrounded by family. Rachel’s goal is to raise funds to support the supportive/palliative care program so they can continue to provide future patients and families with the same compassionate care.
“I was so touched by palliative care I wondered why more people in the community didn’t know about it,” says Rachel Llanos, supportive/palliative care advocate and parent, Miller Children’s. “I want to be able to help other families have access to a program that ensures a child’s comfort and needs are met.”
Participants are asked to bring their spare quarters to the walk for the “Quarters for Quality” campaign which is a fundraising initiative for the palliative care program or start their own fundraising pages to help Miller Children’s expand its supportive/palliative care program. All proceeds collected will benefit the supportive/palliative care program to help Miller Children’s provide extended care to patients and families.
“Not a lot of people understand how valuable this program is,” says Rachel. “The program provided comfort for me, my family and most importantly, Kelly, during one of the worst times in our lives.”
The Palliative Care Pursuit Walk will be held on Sat., March 5, 8 a.m., at El Dorado Park East in Long Beach. $20 registration is required or support one of the walkers and the palliative care program through online fundraising.
About Supportive/Palliative Care: Supportive care, also called palliative care, involves a variety of resources to improve the quality of life for a child with a chronic or serious illness by addressing their needs for comfort. The pediatric supportive/palliative care program at Miller Children’s is unique, and different from hospice, in that it begins at diagnosis and is a part of the care plan, whether the child is at home or in the hospital, throughout cure or bereavement. This distinctive care team applies the latest in palliative care initiatives and ensures palliative care experts are throughout the hospital, establishing Miller Children’s as a leader in pediatric palliative care.